Baby Barrett Updates

Adrian Abraham Barrett

My journey, from the womb to the world…

Journal | Welcome | Pictures

Today’s CF Lunch

Today’s July 4th Special CF Lunch Concoction:

  • Breast Milk/Formula
  • Bananas
  • Olive Oil
  • Rice Cereal
  • Salt

This unique meal was mixed together for the first time on this special day.  The ingredients are gently combined into a pink bowl and served with a spoon.  This high-fat, high-calorie meal is apparently delicious to those that haven’t experienced much diversity in terms of taste.

Published by Baby Barrett, on July 4th, 2009 at 1:08 pm.

You Know You Are Tired When…

Mommy and I sometimes get on the same schedule for exhaustion. Sometimes its not a big deal, because mommy takes charge and manages to keep things going, whether it be cleaning, feeding me, or even updating her Facebook page.

But there was this one time, a few weeks ago, where mommy and I both fell asleep while I was eating from a bottle of breast milk. We think it was for only a few minutes, but we really can’t be sure. We were cozy though. We could have napped for several hours if the day would have let us.

Maybe some other time…

Published by Baby Barrett, on June 13th, 2009 at 12:50 am.

Now, Now, Now…

I want my own cell phone.  Now.  I maybe could wait until I turn 4 years old.  But I’m not sure that my parents will let me have one even then.  They are old and don’t know what its like to be a kid.  Daddy used to get hit with wooden spoons from the kitchen when he was bad.  Several even broke while he was being spanked.  I know mom and dad won’t do that to me,  because in this day and age, I can sue them and become emancipated so I don’t have to listen to them anymore.  If only daddy could go back in time and try to sue his parents.  It doesn’t matter that he deserved it, it just matters that he could go back and maybe get away with it.

Communication is key.  When mommy says “get the ball” or “grab it”, she should clarify if she is talking to me, or Lucy.  Lucy always comes running and is all over me when mommy is trying to play with me.  That has to be worked out.

If I don’t get what I want, I will let you know.  I want my bottle when I want it, I don’t want the bottle when I want the breast, and I want to get out of the car seat when I want to get out of the car seat.  They always take their time with me.  No rush guys, go ahead and finish your lunch, your dinner, your phone conversation.  Heck, go ahead and finish the last three minutes of your TV show.  I’ll just be up here screaming.

But honestly, I’m a good baby.

Ugh, parents.

Published by Baby Barrett, on June 12th, 2009 at 12:18 am.

My Free And Clear Plan (Not Sprint’s)…

On Monday, June 1st, I had my latest CF Clinic appointment. It was okay, but I had to get another throat culture (which they take every time I’m there), and they had to draw blood. I wasn’t happy about either. But my lungs sounded great, my weight is great, and my height is right in line with my weight.

The nurse at the clinic told me that a lot of parents worry about getting the call with the results, as mommy and daddy told her they were. She told them not to worry, as she will call before Wednesday if the results are not good.

On Tuesday, June 9th, daddy got a call at work from the nurse, and of course he panicked since it was only Tuesday. But then the nurse says that the clinic is closed for the rest of the week, so that Tuesday was her Wednesday. Ugh. My test results were normal, and nothing in me needs to be treated, well, besides the CF.

My next CF Clinic visit isn’t until July 20th.

My 4-month visit with the Pediatrician was today, and all was still great.  My lungs still sound great, my height, weight, and head circumference were all normal.  The doctors office is always good to me, they let me go into a conference room in the back, rather than waiting in the waiting room due to the increased risk of getting infected.  They allow me to make visits at 8:30 AM even though the clinic doesn’t open until 9am, just so I don’t have to be near other sick patients.  They have hand sanitizer everywhere throughout the office, and I really like my nurse, Jennifer, and my doctor, Heidi.

Nurse Jennifer has offered to babysit for when mommy and daddy need to get away, but mommy and daddy haven’t let that happen yet.  And both my nurse and doctor have given us their cell phone numbers and their email addresses.

So to wrap things up, my visits verified that my lungs are clear and my body is free of anything bad for me. My “Free and Clear Plan” will hopefully keep me that way through next month. But sadly my plan costs more than a plan from Sprint.

Published by Baby Barrett, on June 11th, 2009 at 8:23 pm.

4 Months Old…

Well, so it took me a month to get back to writing.  Sorry about that.  Many of you have been asking mommy and daddy what’s up with that, but I’ve just been busy.

As you probably read from my last post, I rolled over, I’ve been to all sorts of appointments and weight checks, I’ve started grabbing everything, and just recently started grabbing things with both hands.  Things such as my Adrian the Alien stuffed spaceship.  Mommy liked the name, so she bought it for me.  I like to hold it in both my hands and inspect it.  I pull on it, and turn it around.  I also have a book that makes a crinkly sound when I touch it.  Each page shows different animals and the sounds they make.  I take it with me when I go for car rides.  I also like to bat at the things that hang from my pack-and-play, and grab at things that are attached to my crib.  I’ve been making a mess on the mirrors in both my crib and my pack-and-play, they have my hand and fist prints all over them.

I’ve been eating solid foods for almost the last month.  I’ve had chicken, chicken and apples, pears, carrots, peas, peaches, banana mixed berry, rice cereal and continue to have my applesauce.  My favorites are the pears and the carrots.  But daddy missed once (he claims that I moved) and the carrots went up my nose.  But Grandpa Gene did the same thing when he visited.  Maybe it’s a problem with my paternal side of the family.  My nose looked orange inside all day.  It was hard to get it all out.  But I’m loving the new food, but its part of the reason I’m busy, as my meals take a little longer now.  The CF clinic has requested butter be added to my baby food for the extra fat.  I’m also up to 1/4 teaspoon of salt a day, because my last test showed I was in the normal range, but at the bottom of that range for my necessary salt levels.  I also get a lot of tummy time now, and I’m starting to enjoy it.  Before I would get tired easy and wouldn’t like to do it, but now, I’m a pro.

For my 4-month old birthday, daddy gave me a Le Mutt.  Brand new, as his is old and pretty much destroyed.  He gave it to me just after midnight, so I had it right away as my birthday started.  I was asleep, but I still managed to find it, pull it onto my chest, swing it around again, then moved it above my head.  It was nice and soft, and fun to play with, even as I was sleeping.  Daddy then came in and moved it to the foot of my bed so I wouldn’t play with it anymore.  He’s doesn’t believe I’m old enough to have a stuffed animal with me in the crib.

My next doctor’s appointment (my 4-month checkup) is tomorrow with my pediatrician.  I’ll be sure to let you all know how it goes.  Since I didn’t post in the last month, this next month I’ll have to post extra to make up for it.

I also have a ton of pictures to show everybody, so I look forward to posting them!

Published by Baby Barrett, on June 10th, 2009 at 9:06 pm.

I Rolled Over!

I was waiting for tomorrow to write my next post, because that would be 4 months, and my last post was 3 months, but it was such an amazing step, well, roll, that I had to let everyone know. I probably could have rolled awhile ago, but mommy was just so adamant that I roll over today, so I finally did it. I was laying on my stomach, and rolled onto my back. She was working with me all day to help me, but I wanted to wait until I had daddy home to see it.

Daddy finally came home, but was cleaning the kitchen after dinner, so even though I waited for him to get home before doing it, he still missed the first one. He was running quickly to see it while it happened, but he missed it by half a step.

So what does mommy make me do? She makes me do it again, and again. Then daddy told her to stop so I didn’t get tired, but I was actually tired after the first one. So what does mommy do this time? She makes me do it again so she can get it on the video camera. But Lucy (my dog) walked in front of the camera just as I rolled over. So I had to do it YET AGAIN. I was so done with it at this point.

I’m probably not going to do it again unless mommy makes me. She is the one that almost always feeds me though, so maybe I should do what she wants every once in awhile. Maybe someday I’ll roll over from my back to my stomach, but it’ll be on my terms next time.

Published by Baby Barrett, on June 9th, 2009 at 11:15 pm.

3 Months Old…

Yesterday I turned 3 months old, and I’ve officially graduated out of the “newborn” description, and into the “infant” description. I don’t feel any different. Well, I’m bigger, and I’ll know my weight on Wednesday (I’m hoping for at least 12 pounds). I’m also making more sounds, and sometimes repeating the sound again and again when mommy or daddy repeats it to me. It’s a fun game. I’m swatting at the toys in my pack and play (they have bells in them), and I like to look in the mirror in there too. I’m also getting better at “tummy time” so soon my neck and arms will be as strong as my legs. Well, maybe I do feel different and I don’t even know it. It is amazing how fast I can change.

My 3 month old birthday also fell on Mother’s Day. Daddy took care of me in the morning, and let mommy sleep until 1pm in the afternoon (clearly she was very tired). He then helped me write a sweet letter to mommy, and we went out for lunch to wherever mommy wanted to go (she picked Dairy Delight).

It was a fun day for all of us!

Published by , on May 11th, 2009 at 9:27 pm.

Rocking The Cart, I Mean Stroller…

Several times mommy and daddy have found themselves rocking the carts in the grocery store or Babies R Us back and forth, instead of rocking my stroller. It’s become such a routine thing, they don’t even realize they are doing it. Crazy.

Published by , on May 6th, 2009 at 2:21 pm.

Every Ounce Counts…

Mommy pointed out my mistake, that I actually weighed 11 pounds, 7.2 ounces yesterday at the CF Clinic. Not the 11 pounds 3 ounces as previously stated. I have corrected my post from yesterday. Another First! My first mistake!

Published by , on May 5th, 2009 at 11:49 am.

Not Your Normal Bath…

Suggestions for Mommy:

1. I can understand that I can poop so bad that I need a bath after a diaper change. I really do. But why on Earth would you wrap me naked in your bath robe while getting the bath ready? Did you not expect me to poop all over the robe and get myself dirty all over again?

2. After a bath, when you wrap my naked body up in the towel, the cool air hits me. What does that make me want to do? Yes, I urinate. All over the towel and myself. Kinda defeats the purpose of the bath, right?

Anyway, last Wednesday I had a weight check that put me to 11 pounds. Well, really it was 10 pounds and 15.5 ounces. But .5 ounces gives me the prerogative to round up. I’m in the 25th percentile, which is in a normal range, but I hope to gain more to get closer to the 50th percentile.

I had a CF clinic visit today, and I got a “green light” meaning that I’m currently at low/no risk. My weight was at 11 pounds and 7.2 ounces. They’ve increased my enzyme amount for each meal, and increased the Zantac amount which I get three times daily. Next visit (June 1st) they will do a blood test to make sure I’m getting the correct amount of my vitamins that I take each day, and also checking my salt levels to see if I need more salt each day. Right now mom and dad split it up, but give me between 1/8 – 1/4 tsp of salt each day in my breast milk.

I’m also now having chest physical therapy (CPT) twice daily. The Respiratory Therapist taught us how to do it, but it’s a 15 – 30 minute process, so about an hour a day. It involves percussing on my chest, back and sides hitting all areas of my lungs to break up any mucus that is in there. While they think there is little, if any, in there currently, it doesn’t hurt and it’s something I’ll have to do for the rest of my life. It’s used as a preventative measure to keep me out of the hospital. When I get older, they will give me a vest that I wear that does the same thing, saving the arm strength of having to do manual percussions.

It’s really neat at the CF Clinic, they take us immediately to a room so I don’t get exposed to anything. Once in the room, several nurses visit (check my weight, height, and oxygen levels), then the Social Worker visits, followed by the Clinical Care Nurse, the Respiratory Therapist, the Phlebotomist (the ones that do the lab tests and draw blood), the dietitian, the pharmacist, and the CF Pulmonologist. They don’t always come in the same order, but they are very efficient. Even with efficiency, we are there for at least two hours, sometimes three hours. Today’s visit was three hours long. But we don’t mind, because we learn a lot of good information.

After the positive CF Clinic visit, we went to Babies R Us so we could use up the gift certificates from Ruth, and from Grandpa Gene and Ann. I got another mirror to put in my crib (I already have one in the pack and play, but it’s supposed to be in the car). I also got a few other food utensils and cups for when I’m a little older. The CF dietitian suggested that we look into starting with baby foods, even though I’m a little early for that, she thinks it’ll help with protein and fat (especially the meats). Since I take my applesauce so well, I’m sure I can handle other foods. One criteria is weighing 12 pounds (which I’m almost at) and another criteria is 4 months of age. It’ll be up to my pediatrician to make the decision.

Dad went to a CF Parents Night Out at the hospital last week. A doctor had flown in from Ohio talking about the studies they’ve been doing for 8 years, and how psychology plays a positive role when used with a child with CF. Daddy learned a lot about using psychology in regards to getting me to eat and to eat foods that are beneficial to my health. We’ll just see if all that works on me. I’ll probably out-smart him.

I went to the mall for the first time two weeks ago, Fashion Place Mall. I was covered the entire time, so I wasn’t at much risk of catching anything. That same day I visited daddy’s work. That was the second time. I get more exposure there, but they can’t keep me in a bubble.

Since I’m getting bigger, mommy is putting me in every outfit possible to say I wore them at least once. She’s also trying to take pictures when she can. Speaking of pictures, I’ve got more that need to get on this site. I hope to get them up this week.

And today was another first! I took my Tigger rattle and threw it out of my stroller while in Babies R Us. Mommy picked it up (but wouldn’t give it back). Maybe eventually I’ll start throwing more stuff out, and see what they do. It’s always fun training the parents!

Published by , on May 4th, 2009 at 11:40 pm.