Baby Barrett Updates

Adrian Abraham Barrett

My journey, from the womb to the world…

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My New Car…

What could have been a new car has arrived. It’s my vest from RespirTech for my cystic fibrosis. It costs $15,000 and insurance (United Healthcare) has so graciously offered to pay $2,000 leaving us with a $13,000 bill. I can’t believe RespirTech sent it knowing the financial situation we are in, but whatever. It is very nice of RespirTech to put my care first and worry about payment later. And it’ll sure help me with my airway clearance. I’ve begun to develop a minor cough on the trip to Wisconsin (which is nothing in comparison to my parents).

I took my first trip to Wisconsin this last week. Sadly, it was to go to my Aunt Robin’s funeral service. She always would call me “Little A” or “AA”. I never was able to meet her in person, but she would always ask how I was doing. I went to Culver’s a lot on the trip as well, and I learned that the cheese curds were the “healthiest” thing for me. Which means they were the “unhealthiest” thing for everyone else.

I waved for the first time, and it was to my uncle Justin. It was very sweet when I did it again for him at the airport as he was leaving. If you ask me where my nose is, I point to it (if I feel like it). I was able to visit my other cousins (Tristan, Vance, Madison, and Lilliana) and my other aunts and uncles (Mike, Kim, Jessica and Scott). I saw my grandpa Gene and Grandma Ann.  I also went to a Barrett family reunion where I was introduced to a lot more family members and mosquitoes. I don’t like mosquitoes.

As for the plane rides, well, let’s just say I think mom and dad would be okay if I didn’t go on anymore for a long time. Its just hard after long days to try and travel carrying all that stuff. And I can’t help it that I like to push (well, sometimes kick) the seat in front of me. The flight home wasn’t too bad though. Maybe I just knew I was going home.  I actually giggled during each of the bumpy landings, those were my favorite parts.

Before I left for the trip, we also had a CF clinic visit at the hospital.  My weight is not up where it should be, in fact, in the the last almost three months my weight has stayed the same.  So we’ll be trying to really add some weight whenever possible.  I finished my ISIS Clinical Trial (0.9% Isotonic saline or 7% Hypertonic saline) which I did twice daily for 15 minutes each time. I can’t believe it has been a year. I will now be on Pulmozyme each day as well. The bill for that is $2,500 per month and the insurance covers all but $45 of that cost. That’s not including the deductible we have for prescriptions at the beginning of the year, but I digress.

Regardless of everything, I’m happy to be home. I played with my toys right away, regardless that it was 11:30 at night, and I stayed up until 1am. Now I have to get back on a schedule!

Published by Baby Barrett, on August 4th, 2010 at 2:52 pm.