Baby Barrett Updates

Adrian Abraham Barrett

My journey, from the womb to the world…

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Goodbye 2009…

Mommy and Daddy let me stay up until midnight last night to watch the ball drop in Times Square with Ryan Seacrest and Dick Clark. I bounced to the music and tried to crawl away a few times. I gave them both a kiss at midnight, but Daddy got a good wet one from me (I had my mouth open and full of drool, right on his lips). I smiled and laughed during it all.

While it’s the end of a year, it hasn’t been a full year for me yet (I have to wait until February). A lot has changed in the year. I look back on it and am amazed with all the progress and how much I have grown. I started the year in the womb, and when I was able to explore the world beginning on February 10th, I spent it with an extra couple days in the hospital (ironic, knowing everything I know now). The doctors were just waiting to make sure I didn’t get sick since the placenta had such a severe infection, but I was fine. I spent time under the lights with my sunglasses to help reduce jaundice. When I got home I rarely cried. In fact, it wasn’t for months until I really cried much, but by then I was more alert and knew what was going on and learned that crying would get me something. I slept through the night right away, and was up to at least 8 hours straight around two months old and soon extended to 11 hours straight. I outgrew outfits in record time, and Mommy was struggling just to get me in each one at least once.

However, it was at six weeks old when Daddy got the call about the CF. It changed a lot of things in our lives, and we are all still trying to adapt to the changes. It also brought about good changes, Mommy gets to stay home with me each day, and I’ve met a lot of great people that care for me. My pediatrician and nurse have saved us literally thousands of dollars, by giving us unlimited amounts of formula to supplement the breast milk and only charging us for nurses visits (with no co-pay) whenever possible. While the CF is a constant struggle, we remain optimistic that progress will be made, and possibly even a cure. The VX-770 drug which targets my specific genetic mutations is in clinical trials and is doing very well. It actually modifies the DNA by simply taking a pill, and I can even pass the sweat test that is used to diagnose CF. I really hope it is a success and that I can soon take the pills myself. Thanks to the research of the Cystic Fibrosis Foundation, many potential treatments and cures are in the works.

Moving on from the CF (as I wish I could in daily life), I’ve learned so much in 2009. I’m crawling and pulling myself up on things and I babble all the time. While I sit and play with all my toys, I also love to explore things and will crawl everywhere to check things out. I have no fear yet, so light sockets, stairs, the cat, cords, and heavy objects are all still of interest to me much to my parents dismay.

I’ve had several visits from family and I had my first trip out of the state (to Arizona) for Thanksgiving. I plan to see family again next month, and they can watch me and all my talents.

I look forward to 2010 and plan to have a great year.

Happy New Year!

Published by Baby Barrett, on January 1st, 2010 at 11:08 am.