Baby Barrett Updates

Adrian Abraham Barrett

My journey, from the womb to the world…

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Potential CF Cures…

Mommy and daddy are enrolling me in my first clinical trial.  I will be inhaling a concentrated salt solution (hypertonic saline) twice a day which may help to thin the mucus in the lungs.  Researchers have found that surfers and those that breathe in the salty air from oceans and other saltwater areas have less problems than others.  It has been tested for ages above six, and decreased the need for antibiotics for acute respiratory infections, improved lung function, and increased the quality of life.  They are now going to begin testing it for those under the age of six (which includes me!).

Another exciting milestone in the search for a cure, is one of the most promising potential therapies, VX-770 (developed by Vertex Pharmaceuticals).  VX-770 is a compound to that has the potential to be one of the first drugs ever to treat the basic genetic defect in cystic fibrosis and is now moving forward in clinical trials.  It addresses the G551D mutation which is one of my two mutations and it has already been tested by adults.  It is now beginning to be tested for patients ages 6 – 11.  Once the studies are complete, the FDA will determine if VX-770 is safe, effective and acceptable for approval.

I hope it continues to succeed and work it’s way down to my age group!

Published by Baby Barrett, on August 7th, 2009 at 1:32 pm.