Baby Barrett Updates

Adrian Abraham Barrett

My journey, from the womb to the world…

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The Sweet And The Sour…

Daddy has a saying that he uses a lot, which is “without the sour, the sweet just ain’t as sweet”. Today was a continuation of yesterday, with plenty of sour. We received a confirmation and the diagnosis of cystic fibrosis. We met with the pulmonologist, a genetic counselor, and my pediatrician today. It was a long day, as we left the house at 8:30 for the Children’s Primary Hospital, left the hospital at 3:00 to go to my pediatrician, and didn’t get home from there until 4:30.

It was overwhelming to say the least, but the known is always much better than the unknown. We are well aware of the statistics, as well as the advances in medical technology. They are always working on adding tomorrows.

Today I was provided my first enzyme supplement and vitamins at the cystic fibrosis care center. I will be getting the enzyme supplement from mommy and daddy before each meal, and they will give me the vitamins throughout the day. Eventually more things will be added to my daily routine as I get older and as more symptoms emerge. My next appointment at the CF care center is in two weeks, and I will be going back at least every three months for the rest of my life. They provided us with a binder, a book, and a DVD to help educate us on what to expect. And hey, I got my first taste of applesauce today and I loved it! I look forward to getting some everyday with my enzymes and vitamins!

Mommy and daddy know they need to take care of each other in order to take care of me. We are a family and we are each an important part of that family.

While we know the news is our sour, we also know that this will make us treasure each day we have together and hope that we are together not just months, and not just years, but we hope to be together for decades. This bit of sour will make the sweet even sweeter.

Much Love,

-BB

Published by Baby Barrett, on March 25th, 2009 at 6:58 pm.