Baby Barrett Updates

Adrian Abraham Barrett

My journey, from the womb to the world…

Journal | Welcome | Pictures

My First Crushes…

First, there was Rachel Berry from Glee, played by Lea Michele. Who in the Season 1 finale, sang “Don’t Rain On My Parade”. I was fascinated. I would watch the scene again and again to see her perform.

Then, there was Flo from the Progressive commercials, played by Stephanie Courtney. Everytime a Progressive commercial comes on, I run into the room and look up at the TV.

Published by Baby Barrett, on August 12th, 2010 at 5:51 pm.

My First Vest Treatment…

This is my high frequency chest wall oscillation air-pulse generator system!

Published by Baby Barrett, on August 11th, 2010 at 12:41 pm.

My New Car…

What could have been a new car has arrived. It’s my vest from RespirTech for my cystic fibrosis. It costs $15,000 and insurance (United Healthcare) has so graciously offered to pay $2,000 leaving us with a $13,000 bill. I can’t believe RespirTech sent it knowing the financial situation we are in, but whatever. It is very nice of RespirTech to put my care first and worry about payment later. And it’ll sure help me with my airway clearance. I’ve begun to develop a minor cough on the trip to Wisconsin (which is nothing in comparison to my parents).

I took my first trip to Wisconsin this last week. Sadly, it was to go to my Aunt Robin’s funeral service. She always would call me “Little A” or “AA”. I never was able to meet her in person, but she would always ask how I was doing. I went to Culver’s a lot on the trip as well, and I learned that the cheese curds were the “healthiest” thing for me. Which means they were the “unhealthiest” thing for everyone else.

I waved for the first time, and it was to my uncle Justin. It was very sweet when I did it again for him at the airport as he was leaving. If you ask me where my nose is, I point to it (if I feel like it). I was able to visit my other cousins (Tristan, Vance, Madison, and Lilliana) and my other aunts and uncles (Mike, Kim, Jessica and Scott). I saw my grandpa Gene and Grandma Ann.  I also went to a Barrett family reunion where I was introduced to a lot more family members and mosquitoes. I don’t like mosquitoes.

As for the plane rides, well, let’s just say I think mom and dad would be okay if I didn’t go on anymore for a long time. Its just hard after long days to try and travel carrying all that stuff. And I can’t help it that I like to push (well, sometimes kick) the seat in front of me. The flight home wasn’t too bad though. Maybe I just knew I was going home.  I actually giggled during each of the bumpy landings, those were my favorite parts.

Before I left for the trip, we also had a CF clinic visit at the hospital.  My weight is not up where it should be, in fact, in the the last almost three months my weight has stayed the same.  So we’ll be trying to really add some weight whenever possible.  I finished my ISIS Clinical Trial (0.9% Isotonic saline or 7% Hypertonic saline) which I did twice daily for 15 minutes each time. I can’t believe it has been a year. I will now be on Pulmozyme each day as well. The bill for that is $2,500 per month and the insurance covers all but $45 of that cost. That’s not including the deductible we have for prescriptions at the beginning of the year, but I digress.

Regardless of everything, I’m happy to be home. I played with my toys right away, regardless that it was 11:30 at night, and I stayed up until 1am. Now I have to get back on a schedule!

Published by Baby Barrett, on August 4th, 2010 at 2:52 pm.

Adrian The Conquerer…

First, there was the vacuum (okay, well, I’m not perfect with that yet, but pretty close).
Then, there was the grass (okay, same there, but I can at least walk on it now).
Now, there is the couch (okay, I was never scared of the couch, but I can climb up on it now!)

Nothing can escape my grasp. Don’t want me to have something? Don’t put it on the back of the couch. For I shall now be known as….Adrian The Conquerer (imagine me with a cape standing all proud of myself).

Copyright 2010 – Adrian The Conquerer, LTD

Published by Baby Barrett, on July 19th, 2010 at 8:16 pm.

Missing…Reward If Found

Missing: Hot Wheels car.
Color: Blue.
Make: Unknown.
Model: Unknown.
Last Seen: In Parker’s Park in Overlake (Tooele, UT).

It was my first lost toy.

Published by Baby Barrett, on July 15th, 2010 at 9:52 pm.

A Rainy Sunday…

Nothing much to do except treat ourselves to Wendy’s, go for a brief Sunday drive around Tooele and walk around Walmart.


Published by Baby Barrett, on June 13th, 2010 at 3:56 pm.

Lost No More…

It was a Sunday night (as in, Sunday, May 23rd). Mommy, daddy and I watched the series finale of Lost. The show itself started before I was…well, anything. But mommy and daddy started watching the show while I was in the womb. And the show ended while all three of us were in the basement watching it in the theater. While it was entertaining, I was more interested in climbing into the beanbag chair and then rolling off the beanbag chair. I would do that again and again, but stopping every once in awhile to play with something else, or watch bits of the show. This is the only episode I able to actually “see”. Since I was either in the womb or in my crib and not allowed to watch TV. This was a special exception to the “no TV” rule. And now I am Lost No More…

Published by Baby Barrett, on May 24th, 2010 at 7:12 pm.

Mrs. Fields…

She made me a cookie the other day. It was good, and best yet, it was free! I ate the entire thing all by myself (there was only a small crumb leftover). It was my first Mrs. Fields cookie, and I thought it was noteworthy and wanted to share it with the world that I enjoyed it.

I had my CF Clinic visit at the hospital on Monday, and things went okay there. However, I now know that when somebody comes into the room wearing a gown, it’s never a good thing. I tried clinging to mommy and daddy but to no avail. They did their tests anyway. The Pseudomonas test came back negative, so I don’t have to worry about another round of TOBI right now. In three months they want me to look into beginning the vest therapy. So they gave us reading material to determine which brand we may prefer over others. I weighed 25 pounds, and they were all amazed with my curly hair. After my visit to the hospital on Monday, I had my 15 month pediatrician visit on Tuesday. Things all went well there too.

Published by Baby Barrett, on May 12th, 2010 at 2:32 pm.

Mi Segunda Cinco de Mayo…

While mommy and daddy will be having tacos tonight, I’m sure I’ll be getting at least some of the shredded cheese!

So, since my last update, some major developments:

First Steps: Yup, not on daddy’s birthday like it was supposed to be, but more around April 19th (a week later). I’m getting better each day. I fall over plenty, but I’m getting the hang of it.

TOBI: Yeah, not as exciting as first steps, but I went through my first treatment of TOBI for the Pseudomonas with which I as able to infect myself. I had no problems with the treatment at all, which mommy and daddy feared would be a problem. I got another culture done on Monday and I will know the results next week to determine if I have to do another round of the treatment which adds another hour a day to our routine.

Snow: I got like a couple nice walks in to the park, but then the end of April came with more snow. I don’t get it. I will never learn the seasons at this rate.

Great Strides: I’m getting ready for the walk in June. The donations aren’t as high as they were last year, but we’ve got one month until June 5th. The rumor is that my Grandma, Aunt, and Cousins will be coming up for the walk again this year. I also think I’ll be seeing my other Grandparents, Aunt, Uncle, and Cousins sometime in the near future. I look forward to visitors!

Published by Baby Barrett, on May 5th, 2010 at 3:44 pm.

My Montage…

Published by Baby Barrett, on March 5th, 2010 at 7:46 pm.